Mark Amidon replied:Date: Fri, 17 Dec 1999 00:39:31 -0500 From: Tom LimoncelliSubject: Re: HIV+ name reports Name tracking of HIV test results is bad. It discourages people from getting tested, and therefore spreads the disease more. The argument that "people are more at ease with the disease and aren't worried of being stigmatized" comes from health care professionals that have been dealing with AIDS too long and have become out of touch with real people. I could list ten other reasons why it is bad, but the above reason is good enough. Long ago in New Jersey (the #1 state for AIDS in heterosexuals, by the way) they asked for your name but it was optional. Then they had to ask for a name, but they didn't have to verify it, and would tell you that if you wanted to be anonymous to give a fake name. Then they were told that they would lose funding if they didn't take names. See the trend? My recommendation from 1989 is still the same as it is today. Only get tested if it is confidential (they wouldn't reveal results to anyone but you) and anonymous (they don't have your name so that if the records are taken by the government they are useless). If forced to give your name tell them "Ronald Reagan". I think it is a great political statement. I hold him accountable for more than 80,000 American deaths. More than the total deaths in the Vietnam War. His coalitioning with the radical right was a big part in stomping out AIDS education that mentioned condoms or safer sex. Reagan even refused to say the word AIDS in public until his last year in office. It wasn't until terrorist groups formed and scared the government into talking about the issue. But most of all, as the father of a gay man, he disgraced this country by not showing the love and acceptance that anyone that supports "family values" should demonstrate. I haven't read the entire thread. Flame at will, bullocks! --tal -- Tom Limoncelli -- http://mars.superlink.net/user/tal -- tal@plts.org "Cautious, careful people, always casting about to preserve their reputation and social standing, can never bring about a reform." Susan B Anthony
Marcia wrote a better reply than I could have:
The leaflet was sent out several years after such a concept was first proposed, partly b/c of Reagan's sensitivities. Also the word "condom" was verboten for a bunch of years for the same reason (Remember "what if I told you that preventing HIV transmission was as easy as putting on this sock?").(1) Britain and some other European countries started similar public health campaigns two or three years earlier than did the United States.(2) Koop's leaflet mailing was indeed a good thing, but might have done far more good had it been sent when HIV transmission routes were first understood, and not years later. (1) I have no first hand memory of the Koop mailing -- I was young enough that I don't think my parents showed me the leaflets. I do remember the "sock" posters well into the late 80's. The book _And the Band Played On_ chronicles some of the timeline for the US public health campaign re HIV. It's been 8 years or so since I've been to the Navy Medical museum, but there at least used to be an exibit there, too. (2) This comment is mostly based on a couple of newspaper articles I read in '96 or '97 while I was living in Britain. I have a vague memory of the articles being in celebration of the success of the early education campaigns -- that there were a much lower proportion of HIV in the gay community there than here. But this is a several year old memory ;-7